Collaborating with fellow nonprofits and business leaders is key for CMM Cares, a charitable foundation with a vision of making a difference in the lives of Long Island families. We’ve recently worked with the Guide Dog Foundation, a Smithtown-based national nonprofit organization that trains and places guide dogs for individuals who are blind, visually impaired or have other disabilities, to identify a career change dog that could be matched with one of our 2021 Adopted Families.

In 2021, CMM Cares supported three families including The Neikens and their son, Casey. Casey is a 13-year-old boy who was diagnosed shortly after birth with Epidermolysis Bullosa (EB), a group of rare diseases that cause fragile, blistering skin. With our funds raised and the support of the business community, we were able to make significant changes to Casey’s life which were celebrated at our annual Wine & Dine Gala in September of last year.

After introducing John Miller, president, and CEO of the Guide Dog Foundation, to Casey’s father John Niekens, the Guide Dog Foundation was able to identify a career change black Labrador Retriever that has now been adopted into the Neikens family! The dog provides Casey with companionship in his everyday activities and allows Casey to enjoy the natural therapeutic support that comes with forming a close bond with a dog in the comfort of his own home.

“I want to thank CMM Cares for introducing us to John Miller and the Guide Dog Foundation,” Beth Neikens, mother of Casey, says. “Our dog is an absolute joy. Casey is such a different kid, so happy and so full of energy. She is the absolute perfect, sweetest little dog.”

“The Guide Dog Foundation is proud to work with a great partner like CMM Cares in placing this career change dog with the Neikens family,” said John Miller. “It is so impactful when local nonprofits can join forces on initiatives like this. We are eager to watch the bond grow between Casey and the pup and work with CMM Cares on future projects.”

“We are so thankful for the Guide Dog Foundation and their generous offering for the Neikens family,” says Victoria Tringone, Executive Director of CMM Cares. “By working together with organizations like the Guide Dog Foundation, we can compound our efforts and continue supporting our Adopted Families beyond our yearlong commitment.”

Following a successful year, we are pleased to share that we are able to support two families for 2022! Learn more about them and how you can get involved here.

Sammy Ortiz, an 11-year-old patient of Stony Brook Children’s Hospital, and his family were nominated for our program by their medical social worker. At 4-years old, Sammy suffered an illness that led to encephalitis with severe neurological devastation (nonverbal) and became wheelchair-bound. The doctors informed the family that Sammy was expected to be bedbound with limited function in movement and would require total care.

Through his parents’ persistence, they have obtained the services and equipment to afford him every opportunity to progress and have meaningful movements. Some equipment was covered through their insurance, but much of his adaptable equipment was not. Committed to giving Sammy every opportunity available, his parents have taken loans to secure all items and equipment that are beneficial to his well-being and recovery.

The family relocated to a school district that has been instrumental in providing Sammy with adequate academic support to further his functional progress. Despite the odds, Sammy can walk with two people’s assistance and is able to minimally gesture with physical/facial movement. He recognizes the familiar faces of those who are frequently involved in his care.  However, he still requires total care and 24/7 shift nursing as he still suffers from minor seizures throughout the day and cannot be left unsupervised.

On April 24, 2022, the family faced yet another devasting challenge.  A fire destroyed their apartment unit and all of Sammy’s expensive adaptable equipment and supplies. Grievously, all family items were lost. Stony Brook Children’s Hospital’s discharge planning team has been working with supply companies and insurance companies to replace his basic supplies. However, the adaptable equipment (that the family is still paying off loans for) that has been so beneficial for Sammy’s progress unable to be replaced by the hospital. For the first time, the family found themselves without a stable home and unable to provide for their basic needs. They qualified for emergency housing, but it has limited accommodations for a family with a special needs child.

CMM Cares Support

With the help of our donors and fundraising efforts, CMM Cares has been able to offer the support need to help this family get back on their feet and relieve some of the financial burden of replacing all that was lost in the fire.

CMM Cares purchased Sammy a brand-new Sit to Stand lift, which is an assistive device for patients who do have some mobility but still need help moving from one position to the next. This piece of equipment ensures Sammy’s parents and aides can safely support and transfer him as needed. This specific piece of equipment retails for over $3,000, and without renter’s insurance at the time, Sammy’s original lift was lost in the fire.

Also lost in the ashes was Sammy’s adaptive tricycle which has proven instrumental and beneficial to his daily care. Adapted sports bicycles enable children and adolescents with physical disabilities to improve leg strength, posture, balance and range of motion. While not a medical necessity, replacing Sammy’s Rifton Adaptive Tricycle has given him back the opportunity for exercise and recreation and to experience the joy and freedom of independent movement.

Another piece of equipment that Cares purchased on behalf of the Ortiz family is a hygiene and toileting system that serves as both a as both a toilet and shower chair.  The commode system is designed to improve the health and lives of clients and caretakers and because it accommodates toileting, showering and bathing, the Rifton HTS eliminates the need to buy separate equipment for each activity, making it versatile in their tight space.

In addition to replacing equipment already proved beneficial to Sammy’s care, CMM Cares fulfilled the Ortiz Family’s biggest wish, to make their new apartment feel like a home. With a small grant from Bob’s Discount Furniture Foundation, we purchased new furniture to furnish their home. The Ortiz family now has a new dining room table with chairs, new dressers, nightstands, and mattresses. We were able to go even a step further and purchase items beyond the basic necessities, such as winter coats, boots, lamps, a television, and even a new Christmas tree, giving them a renewed sense of comfort as they replace all that was lost.

A special thank you to Stony Brook Children’s Hospital for nominating and introducing us to this incredible family, to MedMart for helping source the medical equipment, to Bob’s Discount Furniture of Nesconset, and our CMM Cares Board for their support of this family. We wish the Ortiz Family the very best in the future and hope we have made a lasting impact on Sammy and his parents.

If you’re interested in helping us support this family with in-kind donations, and financial support for our plans, or if you know local businesses that may be interested in participating, please contact Victoria at vtringone@cmmcares.org.

Meet our other family for this year!

The five members of the Stelmashcuk Family are Ukrainian refugees who have shown strength and perseverance through the unimaginable. Having fled their home in war-torn Kyiv, they are now trying to rebuild their lives here on Long Island. Click here to watch their touching video.

Nataliia Akinina, born in Ukraine and a legal permanent US resident, urged her family in Kyiv to come to New York and escape the war in Ukraine.  Reluctant to leave their homes and husbands, Juliia (age 32) and her two girls Karolina (age 5) and Kristina (age 13), along with Viktoriia (age 36) and her daughter Marharyta (age 4), began their escape. The journey included living in bomb shelters and driving more than 48 hours to cross the border into Poland. Viktoriia experienced a terrible injury during their travels that required emergency surgery, leaving her in two long leg casts and unable to move without assistance. The next challenge was to secure the necessary documentation via the Embassy for all to legally come to the United States. With the help of Sen. Charles Schumer, Rep. Tom Suozzi, and Northwell Health advocating for the family, their visas were granted, and all five refugees arrived in New York on April 8, 2022.

Viktoriia is now under the charitable care of Northwell Health, which took her from the airport by ambulance to Lenox Hill so that doctors could address her medical status. We hope that Viktoriia will be able to bend her knees again and walk without the support of a walker or need assistance from a caretaker.

They don’t know when they will see the families, homes, and friends they left behind in Kyiv or their husbands, who stayed behind to protect the country. Currently, the five family members are settling into the home of their friend Ruby, for whom Nataliia provides full-time care. Ruby and her family are helping Juliia and Viktoriia get settled into life here in New York.

Local media outlets have covered their harrowing trip into New York.
Newsday | ABC7 New York

As all five refugees are settling into life in Lynbrook, CMM Cares is working closely with the family to identify the best support plan to assist them. To date, we’ve covered expenses for therapeutic horseback riding at Sagamore Hill Stables in Northport. The restorative benefits of horseback riding have provided a source of joy and comfort in the wake of their dangerous journey to get here. While recreational, it’s also an outlet and source of healing and therapy.

Additionally, the girls have received over 100 hours of virtual English lessons. Through Varsity Tutors, CMM Cares has covered the expenses of the weekly face to face virtual sessions. Improving their language skills has been instrumental in adjusting to life here in the States. The customized lessons plans have helped overcome the communication barrier in both the classroom setting and the community at large. One of the biggest benefits of the sessions being held virtual is that they are recorded, allowing the girls to watch the sessions over again for continued practice.

Through our collaboration with local nonprofits on Long Island, CMM Cares goes above and beyond our Support Plans, presenting valuable resources and opportunities. These endeavors are dedicated to bringing smiles to those who are navigating difficult times. If you’re involved with a local nonprofit that shares our vision of supporting families in need, we encourage you to reach out. Together, we can make an even greater impact!

MEDIA COVERAGE

Newsday | ABC7 New York

If you’re interested in helping us support this family with in-kind donations, and financial support for our plans, or if you know local businesses that may be interested in participating, please contact Victoria at vtringone@cmmcares.org.

Meet our other family for this year!

On June 6th, 2022, CMM Cares hosted our annual Charity Golf Outing at St. George’s Golf & Country Club in Setauket. Over 100 attendees and over 15 sponsors showed their support for our Adopted Family initiative, allowing us to increase the help we can provide for our families of this year. Sponsors and guests of the business community joined together to start the day with a BBQ, a massage, and a cigar before heading to the course for an 18-hole shamble. Later, guests enjoyed cocktails, a raw bar and delicious hor d’oeuvres outdoors while the venue buzzed with music by Rubber Soul. We ended the night with a delectable dinner and award ceremony to commemorate our 2022 Community Leader, Sal Ferro.

It was a fabulous day and evening and we are looking forward to the next one! Thank you to all of our incredibly generous sponsors, guests, and donors. Your contribution will go towards changing the lives of our neighbors.

For the event photo album, visit here.